Rarenote,
a platform for providing personalized information
on rare diseases
Rarenote is a service in which rare disease patients can identify medicines under development that are suitable for their needs and participate in clinical trials, based on the health data they upload on the platform.
Rarenote,
a platform for providing personalized information on rare diseases
Rarenote is a service in which rare disease patients can identify medicines under development that are suitable for their needs and participate in clinical trials, based on the health data they upload on the platform.
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Service
Introduction
My data
From collecting health data to development of therapeutics
Patients can systematically collect and manage their health data*. These data can be applied for patient recruitment for clinical trials by pharmaceutical companies and research institutions at home and abroad that support efficient new drug development.

By applying blockchain technology, all data is safely controlled so that no data can be used without patients’ consent.
*Health data: Patients’ health data including genetic test results, medical treatment data, and symptom data.
Therapeutics information
The fastest and most accurate updates on the development of medicines and researches
We translate and edit the latest information on recent studies, most of which are released only in other languages and can be difficult to access, and then select and offer time-sensitive patient-tailored information.
Genetic testing
Identification of causes of diseases through genetic testing
As more than 80% of rare diseases are caused by genetic disorders, it is important to accurately identify genetic issues for disease control and successful treatment. Rare disease patients can get help to discover their causes of illness through Rarenote’s service.
Service
Introduction
My data
From collecting health data to development of therapeutics
Patients can systematically collect and manage their health data*. These data can be applied for patient recruitment for clinical trials by pharmaceutical companies and research institutions at home and abroad that support efficient new drug development.

By applying blockchain technology, all data is safely controlled so that no data can be used without patients’ consent.
*Health data: Patients’ health data including genetic test results, medical treatment data, and symptom data.
Therapeutics information
The fastest and most accurate updates on the development of medicines and researches
We translate and edit the latest information on recent studies, most of which are released only in other languages and can be difficult to access, and then select and offer time-sensitive patient-tailored information.
Genetic testing
Identification of causes of diseases through genetic testing
As more than 80% of rare diseases are caused by genetic disorders, it is important to accurately identify genetic issues for disease control and successful treatment. Rare disease patients can get help to discover their causes of illness through Rarenote’s service.
What Rarenote can make happen
Shortening the Period of Developing New Pharmaceuticals
Clinical trials, conducted to test the efficacy and safety of a new drug, are the most time-consuming and expensive steps in the process of developing a new medicine. This is because it is tricky and difficult to recruit patients who meet the exact sophisticated requirements of a clinical trial.

Equipped with systematically organized health data, Rarenote is capable of quickly recruiting test subjects, thereby dramatically shortening the period of developing new pharmaceuticals.
Enhanced Awareness of Diseases
Rarenote can attract substantial benefits such as the development of news drugs from pharmaceutical companies, related government support and research funds, and widespread social consensus, by gathering scattered patient data in a single space and thus enhancing awareness of diseases.
What Rarenote can make happen
Shortening the Period of Developing New Pharmaceuticals
Clinical trials, conducted to test the efficacy and safety of a new drug, are the most time-consuming and expensive steps in the process of developing a new medicine. This is because it is tricky and difficult to recruit patients who meet the exact sophisticated requirements of a clinical trial.

Equipped with systematically organized health data, Rarenote is capable of quickly recruiting test subjects, thereby dramatically shortening the period of developing new pharmaceuticals.
Enhanced Awareness of Diseases
Rarenote can attract substantial benefits such as the development of news drugs from pharmaceutical companies, related government support and research funds, and widespread social consensus, by gathering scattered patient data in a single space and thus enhancing awareness of diseases.
All these changes can come sooner
with your participation.
Now is the time to open the first page of Rarenote!

All these changes can come sooner
with your participation.

Now is the time to open the first page of Rarenote!
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